Thursday, February 17, 2022

MOMS & DOCS: A COALITION FOR CHANGE IN PEDIATRIC MYOCARDITIS DETECTION


2/11/2022- The Angiofoundation and Integrative Pain Healers Alliance (comprised of physicians, researchers and public educators) and the For Elysa Foundation, a non-profit advocacy group supporting pediatric myocarditis research- united in their first multi-org summit to test drive a coalition concept to unite all advocacy groups for "a common and louder voice for change!"  

The "spark" of the coalition originally came from two “Doctor Moms”- Dr. Noelle Cutter and Dr. Roberta Kline as part of a research assignment on genomic science and Long Haul (post Covid infection) disorders.  Published reports of myocarditis since the early 1900’s about a “sudden heart failure” showed new headlines during the pandemic, drawing a spotlight on the rare viral-driven cardiac disease. Their search led to the For Elysa Foundation, a foundation dedicated to Elysa Rojas (2) who passed away from Viral Myocarditis in January, 2013.

Aptly called "Project: Mommies on a Mission", the name and group design was inspired by For Elysa Foundation founder Mrs. Jana Rojas’ who describes her fellow advocates thusly.  Her foundation was built to promote "improved Education, providing Light and promoting Research to help physicians and families prevent another tragic death from sudden cardiac arrest and viral myocarditis."  IPHA immediately connected with Mrs. Rojas to brainstorm, then build what is now "PROJECT 1"- a two part initiative to offer a supportive arm to their fight against children's cardiac conditions and a united front to advance the role of the medical community.

The IPHA coalition concept and outreach offers vocal support to the many parent groups fundraising on research for their respective focus disorders.  Through info sharing, resource access and expanded networking, the blueprint is comprised of uniting the medical and patient communities to work on more effective protocols. Recognized IPHA research director and cancer diagnostic specialist Dr. Robert Bard (NYC), the clinical alliance staged their plan to bring advocacy to physicians in the form of research and education for improved detection and monitoring solutions from the global imaging society.  "Where parent communities fall short of getting the attention of medical leaders, we as MD's offer some new advantages like conferences, symposiums and our private networks... as parents ourselves, and we want to lend a hand in recruiting all docs to support "the better way" like smarter exam strategies and use of non-invasive imaging in sick visits as part of a major step toward saving more lives from this insidious disease"

"The tricky thing with myocarditis being virally mediated is that Elysa could have had a heart scan a week before she died (the day before she contracted the virus that wrecked her heart), and it would have been normal", stated Mrs. Rojas who emphasized her thoughts on the efficient use of diagnostic imaging is during a sick visit, where any other time prior may not prove conclusive as a screening paradigm.  

The success of the first meeting gave promise to a national outreach, bringing parents and physicians together - where community discussions are the ideal step in problem solving.  “After just this one exchange, we all agreed that major CHANGE needs to happen from the diagnostic area… we need to develop quantifiable and effective early detection methods .  Also, we need to communicate with all ED’s and ICU responders to recognize the urgency of cardiac imaging for patients viral infection- and make that part of a standard exam for pediatric myocardial inflammation”, stated Dr. Cutter.

In a recent interview with NYCRA NEWS, Dr. Bobbi Kline expanded on the initiatives of this project; "one recent hurdle to overcome within our outreach to the medical community appears to come from the current headlines about the rare possibility of myocarditis that may be linked to the vaccine. While just the mention of the vaccine seems to spark political division and conflict, this issue is much broader and our focus is in helping the children, not the politics." 

For inquiries or media contacts, please email: jointhemoms@gmail.com or call: 631.920.5757


EXTRA:
 See the video by Dr. Matt Elias (pediatric cardiologist of the Children's Hospital of Philadelphia) 'A Pediatric Cardiologist Talks Myocarditis & COVID-19 | Perspectives on COVID-19 Vaccine for Kids' .

A Word from Doctor Mom #1

Meet Dr. Bobbi Kline, one of Project: Mommies on a Mission's top advisors and creators. 

"As a mom, my heart grieves for parents, including Elysa’s, who suffer such devastating tragedy. It’s the worst thing you hope never happens to your child, and I truly admire parents who turn a tragedy into something positive. It requires such amazing strength, courage and grace. As a physician, I find my self immediately asking "Why do these things happen? How can we predict or prevent them?" As clinicians, we look for patterns to help guide diagnosis and treatment. We know what to expect, but sometimes they can lull us into a false sense of security. Childhood viruses, as any parent knows, are an expected part of those early years." 

See Dr. Kline's complete review; TROUBLESHOOTING MYOCARDITIS @ Health Resource Digest



Wednesday, February 16, 2022

Powerful New Podcast: Meet RESPONDER RESILIENCE

Whether you are a first responder, a rescue professional, in law enforcement, or are a proud supporter, you won't want to miss the next episode of a compelling new podcast called RESPONDER RESILIENCE. This unique and highly impactful web-based talk show interviews some of our community's finest heroes who offer insight on the most critical issues on the job, while providing viewers with a front-row seat on what being a responder truly means.

Produced by a retired fire Lieutenant co-hosting with two emergency services psychotherapists, Responder Resilience is a video podcast for first responders which is now entering its second season and will be broadcast on BBSRadio.com, YouTube, Apple Podcasts and Facebook Live.  The 45 minute show is dedicated to improving the mental and physical well-being of police, fire, EMS, and dispatch personnel.  Each highly educational broadcast features expert guests sharing vital information about wellness topics for first responders.

Click to visit RR Channel
As a collaborative brainchild, the show promises to cover a wide range of topics pertaining to the various branches of the rescue community and its many members. DR. STACY RAYMOND is a Clinical Psychologist, specializing First Responders and Military Veterans.  BONNIE RUMILLY, LCSW, EMT-B specializes in the treatment of First Responders, and treated Trauma directly after the Sandy Hook School Shootings. DAVID DACHINGER is a retired Fire Lieutenant with over 21 years as a leader in emergency services who has served as Acting Captain and Incident Commander.


"In this silent worldwide crisis, first responders are quietly suffering, due to stigmas around mental health services, and lack of awareness about vital resources that are available to assist them. We can help the helpers, with life-saving resources, resilience strategies and support to help first responders to cope with anxiety, depression, and stress", states Dachinger. "Fire, police, and EMS are professions where more die by their own hands than by the hazards of the job.  Research shows that up to a quarter of public safety dispatchers have symptoms of PTSD and depression."

Responder Resilience is supported by a growing list of benevolent organizations, health and medical societies from the local and national fronts. The F.A.C.E.S. Foundation nominated Responder Resilience the 2021 top Educational Venue Award for their coverage of the Dan Noonan/1975 NY Tel Exchange Fire presentation at the NYC Fire Museum (link).  In addition, the NY Cancer Resource Alliance and its benevolent partners recognize Responder Resilience for its efforts to bring a fresh, new perspective to "the many who give all to save others" by endorsing the show to over 22 informational showcases including: Prevention101.org, the First Responders Cancer Resource, IPHA News, Fight Recurrence, FYII and the upcoming PowerMeets series of 360 Health Alert.  "It is so important to bring the voice of the silent rescuers front and center... this show helps inspire so many- to raise the level of self-leadership while supporting the many members of such a high-risk profession", states Dr. Robert L. Bard, former guest and seasoned commentator of ITN Magazine.

Continued talks with supportive production companies include Lennard Gettz, creative director of IntermediaWorx and Josh Schueller of IPHA Educational Media are exploring the the show's programming expansion.  Prospects for a new lineup of 2022 guests and target topics may include a powerhouse of Change-Makers from the  Post-Military Crusaders Coalition (PMCC) as well as other areas of professional response.   

Responder Resilience continues to push the boundaries of the traditional talk format by launching “documentary style” narrative episodes this season. The show plans to lean into “street credibility” and educational value by offering engaging, conversation-enhancing topics including mental health issues, transitioning from the job, EMDR, spirituality and responder suicide.  New First Responders National Podcast Premieres on BBSRadio.com

New First Responders National Podcast Premieres on https://bbsradio.com, Apple Podcasts, YouTube: https://www.youtube.com/c/ResponderResilience,
For resilience strategies with compassion and humanity from the front lines of responder health and wellness, watch it live, Wednesdays 7pm ET.


JUST SOME OF THE TOP SHOWS INCLUDE:

    Finding The Right Therapist, When Your Comfort Zone Is Chaos 

    About Animal Control Officers: Welcome to the Jungle 

    Dispatch - First On Scene, The Forgotten Responders 

    Story of a Trauma Response Team 

    You Are Not Alone: The Power of Peers 

    Resiliency in Action 

    Mutts Mending Mankind 

    Get Checked Now! 

    The Reality of PTSD When Children Die 

    Man With A Mission, Lt. Andy Fredericks, FDNY Memorial Seminar & Exhibits 








The show can be seen on YouTube: https://www.youtube.com/channel/UCasMYw9bGOIdfOwQ_mxt1SA

BBSRadio.com (general link, should get direct link to show soon) https://bbsradio.com/station1and2schedule

Facebook: https://www.facebook.com/ResponderWellnessInc

For resilience strategies with compassion and humanity from the front lines of responder health and wellness, watch it live, Wednesdays 7pm ET beginning January 5, 2022.


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